PNH Program
Managing Paroxysmal Nocturnal Hemoglobinuria (PNH) means keeping track of LDH and hemoglobin labs, transfusions, and complement-inhibitor treatment across hematology and other specialists. Unite's PNH platform brings your complete health record into one secure place and helps you stay on top of the monitoring your condition depends on. You'll be compensated for your time when you take part.
All your records — labs, infusions, and notes — in one secure place
Get compensated for taking part, from home
Get notified about care gaps relevant to PNH
This program is a good fit if you:
- Have been diagnosed with or are being evaluated for Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Are 18 years of age or older
- Receive care from one or more providers connected to a participating EHR system
- Want a single, complete view of your health records
About this program
PNH is a rare, acquired blood disorder, and living with it means staying on top of frequent lab work, transfusions, and treatment across more than one specialist. When your records are scattered across systems, it's easy for an overdue lab or a missed follow-up to slip through. Unite brings your complete record together and watches for gaps — so you and your care team always have the full picture. No blood draws, procedures, or in-person visits are required, and you're compensated for your participation.
Your complete record, in one place
Unite securely pulls your lab results, medication and infusion history, and clinical notes from every provider into a single place — no faxes, no juggling separate patient portals. Walk into any appointment with your full history in hand.
Compensated for your time
Your experience helps improve care for the PNH community, and we value your time. Participants are compensated for taking part — you'll see the details when you sign up on the PNH platform.
HOW Unite WORKS
Sign up for the PNH program
Create your free account on Unite's PNH platform in a few minutes, from home.
Built around one rule: it’s your data.
You’re in Control
You choose which records to share, and who to share them with. Only you can grant and revoke access. Unite will never sell your data.
Hospital-grade security
Your data is protected by end-to-end encryption and stored on secure, regularly audited servers. Regular audits and access controls keep your information safe — applied to everything we do.
Always free, no exceptions
Accessing your records, connecting your providers, and participating in research is completely free. No premium tiers, no paywalls — ever.
Take control of your health story today
Your medical records should make your life easier, not harder. Unite brings them together— and makes them work for you.
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